June 2023

An expert panel with physicians, psychiatrist, and a parent of a child with an autoinflammatory disease respond to audience questions during the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.

A clinical image can make you stop and look. A question makes you decide what you think it shows. That was the idea behind the Rheumatology Image of the Week project, or #RheumIOW. As described in my earlier account of using social media for medical education, fellows from across the country created questions using an

When your child has a rare illness, another parent may understand a worry before you have finished explaining it. Online communities can make that connection possible even when families live far apart. What our research asked A survey presented at the 2019 ACR/ARP Annual Meeting explored how parents of children with rheumatic diseases used social

A learner hears “recurrent fever” and may immediately start listing rare syndromes. A more useful first step is to ask what is recurring: the same pattern, a series of unrelated infections, or a persistent illness that never fully resolves? Begin with the story In a small group, use a de-identified teaching case and ask each

Fevers are tough. They make you feel lousy. They cause worry. They prevent kids from attending school and adults from going to work.

She had headaches for many years. She visited multiple doctors, including her primary care physician, a neurologist, a pain clinic, and even a headache specialist, but she was unable to find an effective treatment.

While every autoinflammatory disease is different, they share many features about how they affect the health and well-being of patients and their families, and how stress and other triggers may cause disease flares.