The Boston Children’s Hospital Autoinflammatory Disease Family Workshop took place on Saturday, August 22, 2020, from 1–3 pm Eastern time and was held virtually through Zoom.
The program included discussions on disease updates, emotional wellness and coping, optimal nutrition, and how to work effectively with schools and school nurses. The event included discussion and questions from families.
Workshop Schedule
1PM-2PM: Medical Presentations and Scientific Talks
- “What Are Autoinflammatory Conditions” – Jonathan Hausmann, MD
- “Update on Research and Approaches to Discovery and Treatment” – Lauren Henderson, MD, MMSc
- “Inflammation and the Gut/Anti-Inflammatory Diets” – Sophie Burge, MS, RDN, LD
- “Treatments, Challenges, Medications and Side Effects” – Fatma Dedeoglu, MD
1:30-2:00PM Question and Answer Session
2:00-2:15PM: Break
2:15PM-2:45PM: School and Wellness Talks
- “Partnering with Schools: Is the School Nurse at the Table?” – Shanyn Toulouse, MEd, BSN, RN, NCSN, Northeast Regional School Nurse Consultant
- “Stress Management and Coping during COVID-19” – Judith Siegel, LICSW and Jodie Shea
2:45-3PM: Program Closing