Clear explanations and practical resources for patients, families and clinicians.
34 results
What do Patients With TRAPS Look Like?
Understand TRAPS, its symptoms, diagnosis, treatment and follow-up.
SAVI: Understanding Interferon-Driven Inflammation
An introduction to SAVI and inflammation driven by interferon signaling.
PFAPA: When Fevers Return Like Clockwork
Understand the fever pattern, diagnosis and treatment choices in PFAPA.
The Basics
Start here: what autoinflammatory diseases are, who they affect, and how to learn more.
Recurrent fever: an assessment and referral checklist
A clinician checklist for episode patterns, mimics, genetic interpretation, monitoring and useful specialist referrals.
Family planning and autoinflammatory disease
Questions to discuss before pregnancy, during breastfeeding or when planning a family while receiving treatment.
Fatigue and daily life: making the impact visible
Practical ways to describe fatigue, prepare for school or work conversations and discuss persistent symptoms with your team.
VEXAS: evaluation and shared care for clinicians
A concise approach to suspected VEXAS, UBA1 testing, hematologic assessment and coordinated follow-up.
IL-1 medicines: what to discuss before treatment
Understand IL-1-targeted treatment, injection training, monitoring and planning for infection, vaccines, travel and refills.
Colchicine: understanding the plan
A patient guide to colchicine in FMF: prevention, safe use, side effects, interactions and questions for your team.
When inflammation does not yet have a name
Understand working diagnoses, inconclusive genetic tests and how to make a follow-up plan while the evaluation continues.
Autoinflammation in adults: patterns before panels
Recognize patterns of adult autoinflammation before choosing genetic or laboratory tests.