Resources

Autoinflammatory Alliance: a wonderful resource about autoinflammatory diseases for patients and families, and the physicians that care for them.
Autoinflammatory Diseases Clinic at Boston Children’s Hospital : a clinic that specializes in the care of children with known or suspected autoinflammatory diseases.
National Institutes of Health: good information about autoinflammatory diseases.
The International Society for Systemic Autoinflammatory Diseases: a website with resources related to autoinflammatory diseases to help facilitate contacts between interested physicians and researchers
American College of Rheumatology: The ACR has good information for patients about a number of autoinflammatory diseases, in English and Spanish
Enfermedades autoinflammatorias: Wonderful resource about autoinflammatory diseases for Spanish-speaking families
Rare connect: An international website where patients with rare diseases can interact and connect with others.
Kids get arthritis too: a website with resources for children with juvenile arthritis, from the Arthritis Foundation
Clinical Trials: a list of open clinical trials for patients with autoinflammatory diseases, registered by the National Institutes of Health
Arthritis Foundation: Information, practical tips and programs to help you reduce pain, get in shape and better manage your Arthritis.

share this: