Autoinflammatory diseases are rare groups of illnesses characterized by recurrent fevers and signs of inflammation.
While every autoinflammatory disease is different, they share many features about how they affect the health and well-being of patients and their families, and how stress and other triggers may cause disease flares.
This workshop explores how lifestyle and wellness practices can help in managing autoinflammatory diseases. We hope to empower patients and their families and provide them with tools to help them better manage their condition.
The workshop was sponsored by the Autoinflammatory Diseases Clinic at Boston Children’s Hospital and by a generous donation from a patient’s family. It took place at Boston Children’s Hospital, Waltham, on April 28, 2018.
Below you will find selected videos from the workshop. By clicking on the title, you’ll also be able to read the transcript of the video.
Expert Panel Discussion
Dr. Carolyn Snell, a psychologist from Boston Children’s Hospital, discusses the benefits of cognitive behavioral therapy for autoinflammatory diseases.
This talk was presented as part of the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.
Watch the video or read the transcript below. Also, take a look at other videos from this workshop.
The transcript has been edited for clarity.
Dr. Carolyn Snell:
Hi, I’m Carolyn Snell. I’m one of the psychologists in the Medical Coping Clinic at Boston Children’s Hospital. We are a group of four psychologists and a number of trainees who work within Psychiatry with patients who have different types of medical conditions. We get a lot of referrals from Rheumatology, certainly, but from also departments across the hospital. We see people with a wide range of conditions, and helping people manage and cope with their medical conditions is one of the major things we do.
Continue reading Cognitive behavioral therapy for autoinflammatory diseases