Kara, the mother of a child with an autoinflammatory disease, describes her family’s experiences with diagnosing, managing, and living with an autoinflammatory disease.
This talk was presented as part of the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.
Watch the video or read the transcript below. Take a look at other videos from this workshop.
Transcript has been edited for clarity.
Julia was a beautiful baby with a full head of curly black hair. Her first couple of years were filled with sweetness and love, but also many unexplained fevers we chalked up to exposure to her two older brothers, who had persistent asthma, migraines, and, of course, normal frequent childhood illnesses. Continue reading Fevers, headaches, and a bear named Valentine: Our family’s journey with an autoinflammatory disease