All posts by Jonathan Hausmann

I am a pediatric and adult rheumatologist at Boston Children’s Hospital and Beth Israel Deaconess Medical Center. I have an interest in autoinflammatory diseases, medical education, and the role of social media and technology in healthcare.
Autoinflammatory

Mindfulness Meditation in Autoinflammatory Diseases

Leave a comment

Dr. Ezra Cohen, from Boston Medical Center and Boston Children’s Hospital, provides an introduction to mindfulness meditation in autoinflammatory diseases and discusses how it can be used by patients and their families.

This talk was presented as part of the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA. 

Watch the video or read the transcript below. Also, take a look at other videos from this workshop. 

The transcript has been edited for clarity.

Dr. Ezra Cohen: Welcome all. I trained in rheumatology and did a lot of research in complementary therapies and have done a lot of exploration in mindfulness over the years and have personally benefited a lot, so I thought I would spend a few minutes and introduce it to you. I’m sure people have heard of mindful meditation—It’s permeated our culture pretty deeply—but I’d like to just describe at least what I perceive it to be and in what ways it could be beneficial for kids and for families. Continue reading Mindfulness Meditation in Autoinflammatory Diseases →

Autoinflammatory

A brief history of autoinflammatory diseases

1 Comment

Dr. Jonathan Hausmann, Boston Children’s Hospital and Beth Israel Deaconess Medical Center, provides a brief history of autoinflammatory diseases.

This talk was presented as part of the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.  You can also view the workshop introduction by Dr. Fatma Dedeoglu.  

Watch the video or read the transcript below. Also, take a look at other videos from this workshop. 

The transcript has been edited for clarity.

Dr. Jonathan Hausmann:

Thank you for that talk. I just wanted to talk a little bit about how I became interested in autoinflammatory diseases. This was a few years ago, I was at a Passover Seder with my family and there was a distant uncle that I’ve never met before. He was a dermatologist and he was working on a book about these weird autoinflammatory diseases. That was my first year as a rheumatology fellow in pediatrics and he was looking for somebody to write a chapter about pediatric autoinflammatory diseases. Continue reading A brief history of autoinflammatory diseases →

Autoinflammatory

Introduction to “Autoinflammatory Disease Lifestyle and Wellness Workshop”

Leave a comment

Dr. Fatma Dedeoglu, Boston Children’s Hospital, introduces the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.

Watch the video or read the transcript below. Also, take a look at other videos from this workshop. 

The transcript has been edited for clarity.

Dr. Fatma Dedeoglu: Good morning and welcome. I really appreciate all of you showing up here today on a gorgeous Saturday. I’m sure you could have done many other things but I really appreciate you coming.

I’m Fatma Dedeoglu, one of the rheumatologists at Boston Children’s Hospital. I work with Dr. Hausmann. I want to thank all the panelists who came here and volunteered to share their expertise. To our organizers, Nikki and Elyse and also our patient representatives Amaya and Danielle. This could not have been done without them. Continue reading Introduction to “Autoinflammatory Disease Lifestyle and Wellness Workshop” →

Dr. Haus

This is how I write science papers

2 Comments

Growing up in Venezuela, I really wanted to be a writer. I loved writing short stories with fictional characters named Petunia who overcame challenges and provided a moral in the end. I remember writing one story in which one of the characters tragically dies. My mom (a psychotherapist) thought it reflected a hidden trauma and sent me to one of her colleagues for evaluation. Fortunately, the therapist concluded (correctly, if I may add) that I was just being creative.

At the time, it never crossed my mind to become a doctor. This sentiment persisted through adolescence; when discussing my future in my college application essay, I stated: “I do not want to become a doctor or a lawyer.” And yet they still accepted me! Continue reading This is how I write science papers →

Autoinflammatory

Autoinflammatory Diseases Workshop

2 Comments

We are holding our first (annual?) Managing Your Autoinflammatory Disease: Lifestyle and Wellness Workshop on Saturday, April 28 in Waltham, MA. The workshop is open to children and adults, and it is free to attend!

The purpose of the workshop is to explore various methods to manage your autoinflammatory disease. While every autoinflammatory disease is different, they share many commonalities about how they affect the health and well-being of patients and their families.  As such, this workshop will address the psychosocial aspects of managing autoinflammatory diseases, especially in empowering patients and families to better manage their condition.

We will have discussions with Rheumatologists, psychologists, parents, patients, reiki masters, art therapists, physical therapists, and yoga practitioners about using various techniques that may improve wellness, even in the setting of autoinflammatory disease. We will also hold roundtable discussions with patients and their families to share tips, wisdom, and life advice.

Please click here to register.

 

Autoinflammatory Diseases Workshop Schedule

9:30am– Registration Opens

10am– Opening Remarks
Fatma Dedeoglu, MD
 Jonathan Hausmann, MD

10:15-11:00am– Expert Q&A Panel
Facilitated by Nikki Tennermann, LICSW

  • Dr. Ezra Cohen, Rheumatologist, Boston Medical Center/Boston Children’s Hospital
  • Carolyn Snell, PhD, Pediatric Psychologist, Boston Children’s Hospital
  • Kara, Parent of a child with an autoinflammatory disease

11:00am-12:00pm– Psychosocial Disease Management Presentations
Facilitated by Elyse McCue, MSW

  • Grace Harrington Murdoch, Reiki Master Teacher
  • Jen Kray, ATR, LMHC, Art Therapist
  • Sara Collins, L/ATC, CPT, Athletic Trainer/Injury Prevention Specialist
  • Caitlin Broughton, Yoga Practitioner

12:00-1:00pm– Lunch
Mingle with other families! Stop by the research table and meet research specialist Ed Anderson!

1:00-1:45pm– Roundtable Discussions
Small group facilitated discussions about topics related to lifestyle and wellness for youth with autoinflammatory conditions

1:45-2:00pm– Closing Remarks