Introduction to “Autoinflammatory Disease Lifestyle and Wellness Workshop”

Dr. Fatma Dedeoglu, Boston Children’s Hospital, introduces the “Managing your Autoinflammatory Disease: Lifestyle and Wellness Workshop,” which took place on April 28, 2018, at Boston Children’s Hospital in Waltham, MA.

Watch the video or read the transcript below.  Stay tuned for more presentations from this autoinflammatory disease workshop over the next few days!

The transcript has been edited for clarity.

Dr. Fatma Dedeoglu: Good morning and welcome. I really appreciate all of you showing up here today on a gorgeous Saturday. I’m sure you could have done many other things but I really appreciate you coming.

I’m Fatma Dedeoglu, one of the rheumatologists at Boston Children’s Hospital. I work with Dr. Hausmann. I want to thank all the panelists who came here and volunteered to share their expertise. To our organizers, Nikki and Elyse and also our patient representatives Amaya and Danielle. This could not have been done without them. Continue reading Introduction to “Autoinflammatory Disease Lifestyle and Wellness Workshop”

This is how I write science papers

Growing up in Venezuela, I really wanted to be a writer. I loved writing short stories with fictional characters named Petunia who overcame challenges and provided a moral in the end. I remember writing one story in which one of the characters tragically dies. My mom (a psychotherapist) thought it reflected a hidden trauma and sent me to one of her colleagues for evaluation. Fortunately, the therapist concluded (correctly, if I may add) that I was just being creative.

At the time, it never crossed my mind to become a doctor. This sentiment persisted through adolescence; when discussing my future in my college application essay, I stated: “I do not want to become a doctor or a lawyer.” And yet they still accepted me! Continue reading This is how I write science papers

The Dishwasher Dilemma

With our old dishwasher, we never knew whether the dishes in the washer had been cleaned. Before putting the dishes in the washer, we had to scrub them well, otherwise, they’d come out almost as dirty as they had been when we put them in. At the same time, the dishwasher would do such a poor job washing the dishes that, even after a cycle, they were never really clean (just ask a few of our guests who often left their glasses of water—or wine!—untouched). So, with the dishwasher full, we never knew whether we should turn it on to clean the dishes or place the dishes in our cupboard. Continue reading The Dishwasher Dilemma

This is what it’s like to be a physician

Let me tell you about a recent morning working in my outpatient rheumatology clinic. I’ll tell you less about the medicine, but more about my process of practicing medicine. I hope to shed light on what it’s like to be a physician, behind-the-scenes. As you’ll see, practicing medicine is time-consuming; it takes much more than the time spent with the patient in the clinic or at the bedside. Or at least it does if you really want to take care of your patient. Continue reading This is what it’s like to be a physician

(R)evolutionary Rheumatology

I spent most of my senior year in college in the basement of the science building, in a room the size of a closet, watching (and videotaping) fish having sex. I was studying pipefish, a relative of the seahorse in which the males get pregnant. I was interested in learning how this unusual quirk of evolution affected the sex roles of the fish, asking questions such as: which sex is more promiscuous, bigger, and more aggressive? Evolution was at the heart of my biology major, and its existence was palpable in every biology class I took—from Genetics sophomore year to a senior seminar on Ecology. It was clear during my undergraduate education that “nothing in biology makes sense except in the light of evolution.” Continue reading (R)evolutionary Rheumatology

Uncovering the mysteries of autoinflammatory diseases and other rheumatic illnesses.

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